Category Archives: Uncategorized

How About Some Actually USEFUL Research?

Mu with iPad AAC ©Kerima ÇevikIt begins every February. Just after Valentine’s Day, the build up of hype to Autism Month kicks off with the media blasting “breakthroughs” “new research” “new hope” for autism. We grit our teeth and manage to get through it, but the latest “breakthrough” got on my husband’s last nerve. He…

via Autism Research Battle Fatigue — autism wars

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Beautiful and Moving Poem by Ausomely Autistic

Inside my head, thoughts are constantly clashing and whirling, I would like to talk, but the words are stuck like glue in my mouth, they cannot come out. The voices in my head are screaming at me, NOT GOOD ENOUGH, NOT GOOD ENOUGH!!!! YOU DON’T FIT IN!! I am having a meltdown, tears are streaming […]

via An Autistic’s struggle. — Ausomely Autistic

Let’s Get That Website Back

In The Politics of Autism, I write about special education and the Individuals with Disabilities Education Act.If you go to http://www.idea.ed.gov, it redirects tohttps://www2.ed.gov/about/offices/list/osers/osep/osep-idea.html with this note: “The servers hosting our idea.ed.gov website are experiencing technical issues. As we work to resolve this issue, information regarding the Individuals with Disabilities Education Act can be found below.”One workaround is to go…

via IDEA Website Troubles — Autism Policy and Politics

The Vaccine Thing

Many posts have discussed Trump’s support for the discredited notion that vaccines cause autism. (He also has a bad record on disability issues more generally.) The story that Trump might appoint anti-vaccine activist Robert F. Kennedy Jr. to head a presidential commission — whether on vaccines or autism — has provoked widespread reactions.Laurie Garrett writes at Newsday:Given Trump’s interest in Russia, he might be interested to know that the first claims of an association among…

via Autism, Vaccines, and Trump: The Hits Keep Coming — Autism Policy and Politics

More Party Giraffes!! (Thanks to “Yes,That Too”)

By inclination, I’m a bit of an imp. I will say a true thing (I’m nonbinary) in a slightly silly way, messing with people using truth. (“Good man. Wait. Woman.” gets responded to with “still no” followed by “nonbinary, good luck”.) This is a character trait, not an isolated incident. On National Coming Out Day,…

via Party Giraffe, Hot Spicy Autism, and Small Acts of NO. — Yes, That Too

Back Again

I’ve been silent for a few months–the result of a cancer scare (thank goodness, it turned out to be benign), dear husband’s pneumonia, and various crises among the teens.

At some point I’ll get back to the posts I was doing about the nature of autism (when this turns into a book, those will be part of the introduction).  For now, though, I’m going to start writing about autistic people’s right to an education–specifically, here in the United States, a “free, appropriate, public education” (FAPE).  (There will be a separate chapter in the book on educational rights.)

I would be EXTREMELY grateful to any autistic adults/adults with autism who would be willing to share with me their educational experiences over the last few decades and their thoughts about education today.  When you were in school, were you taught academic material, or merely life skills?  How effectively were you taught?  How were you treated in school–by administrators, teachers, and fellow students?  How do you think children on the autism spectrum can best be taught?